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Post by toomuchlaundry on Nov 25, 2013 17:36:16 GMT
Hi all,
As subject.
Our little guy is in yr 1. At our local mainstream school. Statement for global developmental delay, and SEBD. He has full time 1-1. School are fantastic, a really great, friendly, nurturing school. They've always listened to me, been attachment trained. His TA's are wonderful.
But...with all that, he is really really struggling. He is aggresive and destructive a lot of the time. He is making some steps forward socially, but not great strides. He is unable to be in the classroom much of the time as he gets really stressed very quickly. He has a room he can go and play with with his TA to calm down, and then reintegrate back into the classroom, but 9 times out of 10 he kicks off as soon as he's back in the classroom so is rarely in there at all. He's going nowhere academically...
Friends I've spoken to think it's probably in part due to us having moved house a couple of weeks ago (same road). I'm sure it's a factor, but it seems there's always something, and if it wasn't this is would be something else...
So what do we do? I don't really want to leave such a supportive environment....
Should we be seriously considering an SEBD school? We had a conversation with the HT about it a while ago. His feeling was that Little Man is nowhere near that point, and that mainstream is nearly always better as children are surrounded by role models and can see something to aspire to...
It seems that it used to be all segregation segregation segregation, and now it's all integration integration integration. But at what cost?
I'm stuck! Advice appreciated!!
Thank you :-)
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Post by sooz on Nov 25, 2013 18:11:39 GMT
I'd love to have an answer for you but I haven't decided yet myself!
Considerations are, will your ds cope in mainstream secondary school? If not, a special school is inevitable eventually, so if you can find a school that goes through primary and secondary it might be best. I understand re role models, but, as is now becoming apparent with my ds, in y3, the gap can widen and his peers are progressing leaving ds behind, not good for self esteem. It's hard being the odd one out, and you don't know why. Special schools are set up to deal with behaviour, it's understood.
My ds is doing ok where he is, so the jury is still out here, I'm not sure he will last until y6 though.
Is the statement set up for mainstream, special or dual provision? If mainstream this can take a long while to change to special.
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Post by leo on Nov 25, 2013 20:22:46 GMT
I would also maybe question what it is that your LO is getting out of mainstream primary? The Head's theory of 'learning from role models' is often a reason given for inclusion - but many children are incapable of learning in this way and need more direct teaching of social and behavioural skills.
I often wonder how much parents are supported in understanding that a choice made now does not have to last forever; the annual review is as much a review of whether the school placement is right as it is of everything else. You could go to a specialised school for a year or two and then work back into mainstream if that was appropriate by then (I'm sure another adopter's son is currently doing this so maybe they'll respond later - Serrakunda?) Some LAs also offer split placements so that children can get specific suport from a specialist school but also have the experience of mainstream/inclusion - children I have worked with often have had the same LSA in both schools so there is more of a feeling of continuity and more understanding of the child. You may find that some time in a less busy, more individualised environment would enable his anxiety levels to reduce enough for him to re-access mainstream later on.
Maybe go and visit some of the other options available; some of them may undertake outreach work and be able to support your current school if you decide against a move.
I can understand how it must feel like a massive decision to make - but it really is not then set in stone. Change is difficult but good change is worthwhile and you may need to consider different school placements at other times during his development as well so don't place pressure on yourself to 'get it right' as these sort of choices can be reversed or modified as necessary. You sound as if in your head you have already made the decision and are just waiting for your heart to catch up with it!
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louie
New Member
Married Adopter
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Post by louie on Nov 26, 2013 13:14:51 GMT
Interesting reading toomuchlaundry, I wish you luck with your decision. Our DS is in year 1 and we are at our second school already! The 1st was an independent school who had coped/supported with my BS's aspergers excellently but couldn't cope with the aggression of our AS. He is now at our local primary which is very supportive and nurturing. He has a full time 1:1 and they are all attachment trained. His 1:1 has read everything Louise Bomber has ever written! Still he struggles massively and is rarely in class. Luckily for him, he is very bright and easily catches up on the work with me. School are putting a series of plans together to reintegrate him yet again, back into the classroom-but tbh I wonder when we will have to make the decision that he simply cannot cope with the stimuli that school provides (and there are only 70 pupils in his school!). If/when we get to that, I know that I will home ed.
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Post by serrakunda on Nov 26, 2013 16:16:08 GMT
I would take a look at the special schools and see what they have to offer. Simba goes to special school and it is a huge dilemma, although he has learning difficulties and autism, he is academically and behaviourally way in front of most of his classmates, but he would be way down the bottom in so many ways in mainstream and I think his self esteem is too fragile for that at the moment. I sort of understand the point about role models, but they won't be role models if he spends most of his time outside of the classroom somewhere separate with a TA, and he can't make friends or gets picked on etc.
I dont think of special school as being segregated, its just the best place for Simba. He gets lots of opportunities to meet other children at cubs, swimming lessons etc. What always does it for me is when I see Simba playing with his friends at school - there is such a wide range of abilities and behaviours but they just all muck in together and no one cares or even notices about the 'quirks' because they all have them. When I compare that to how Simba is at cubs etc, he always gravitates to the much younger children, not that the older ones are horrible to him, but he just isn't on their wavelength, the younger ones are who is happy with. We are starting an inclusion opportunity at mainstream school in January and it will be interesting to see how he responds when he has to stay within his own peer group.
There are compromises -for example lots of children in Simba's school dont have speech and all the children learn to sign. Its nice but Simba doesnt need to sign and sometimes I wish he didnt 'waste' his time learning it, but the overall benefits of being in a class of 13 with 3 staff outweigh the few niggles
It can't hurt to have a look around and weigh up all the considerations
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Post by donatella on Nov 26, 2013 21:08:17 GMT
It's a difficult decision to make. I have two with asd - one in mainstream and one in am EBD school. We had no option for my son because the mainstream he was in refused to see him as anything other than a naughty boy and regularly excluded him.
I was was not at all happy initially but three years in and he's thriving there. He feels safe, his needs are understood and accommodated and he's happy. And having a child happy in school makes everyone's life easier.
My daughter on the other hand is in y3 in mainstream and is struggling more and more. Her differences are becoming ever more apparent - even with support in the classroom. I hear what your head is saying and it all sounds lovely and in an ideal world that would be the reality. My experience though is that the gap widens and if they're struggling in infants it won't get easier in juniors when they're expected to conform.
And so, with that in mind, were also starting down the path of identifying the right placement for her. I'm not sure that's mainstream.
My son is academically very able, he's aspergers so high functioning but all his sensory issues, combined with asd, ADHD, trauma and attachment stuff mean that he just can't do noise, large numbers of people or too much stimulus.
Go go and look at what's available before deciding on what YOU think is right.
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Post by littlemisscheerful on Nov 26, 2013 22:28:21 GMT
My girls were both at mainstream primary, both 25 hrs statements and for us it got worse as they got older and the gaps between them and their peers widened. I started looking at secondary schools when ED was in yr 4, a couple of Sencos thought she'd cope, but i was not convinced. We ended up moving them both to special school when ED was yr5, YD yr4. We have some similar issues to what Serrakunda describes, - we have a very wide intake. Our biggest issue is that there is a small pool of likeminded kids to form friendships with, and because the catchment is so large, everyone is miles away. However, they are happy, they are popular, they are both seen as clever girls (this was not how they were viewed, or viewed themselves at MS). I cannot imagine what our lives would be like if they were at mainstream secondary. I would think it would be worth looking to see what alternatives there are, even if you don't want to make an immediate change. My experience has also been that the more able kids have joined our school in yr 5 & 6.
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Post by toomuchlaundry on Nov 27, 2013 13:04:55 GMT
Hi everyone,
Thanks for your responses they're all really really helpful!!
We have now contacted a special school that looks just fab, and are going for a very informal look around.
Could people tell me a little more about the process of getting a Statement changed and moving over? I'm concerned that the school will say that they are meeting Little Man's needs and that it will be very hard to get the Statementing people to think otherwise. It feels like it should be my choice, but it isn't really.
Has anyone made the move from mainstream to special as a 'positive' move, rather than the only option after clearly failing at mainstream? I just know that school would say it's a blip and he's not failing...
Thanks all, I hate seeing my little man so stressed. I just want to bundle him up like a tiny baby, hold him close, and shut out the world :-(
TML
BTW thanks to whoever gave me my lovely picture! :-)
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Post by toomuchlaundry on Dec 2, 2013 13:21:43 GMT
Hi all,
does anyone have any thoughts on my latest questions? Thank you :-)
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Post by serrakunda on Dec 2, 2013 16:13:10 GMT
have you contacted your local Parent Partnership? They should be able to give some support with the school issues. Not had to use mine ( yet) but they seem to be generally well regarded and helpful
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Post by moo on Dec 2, 2013 18:08:24 GMT
Sorry can't really help with your latest Q... But didn't want to read & run.... Wanted to offer you some support...
If you like the look of the special school & are thinking of sending ds there would it be worth asking them how they recommend you get the statement altered.... I am sure they will have had a lot if experience with this issue....
I am sure the wise ones will be along soon with great tips...
Xx. moo. Xx
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louie
New Member
Married Adopter
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Post by louie on Dec 2, 2013 18:22:16 GMT
I THINK what you do is either through school, or directly through LA state that you believe your LO's needs are not being met and the reasons why. This should then set off a series of meetings and paper work to result in the changes-personally I would contact Parent Partnership or IPSEA, both will give you the correct answer. good luck.
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Post by sooz on Dec 3, 2013 9:37:59 GMT
I'm not 100% sure. I know school have told me we will look to change the statement for my ds in year 4. That's so it will be set up and ready for secondary.
I was told by the office that issues statements in our la that having a statement for special provision does not mean your child cannot stay in mainstream if you choose.
Pasw was fab in helping get statement for my ds so maybe look at getting help there? Xx
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Post by littlemisscheerful on Dec 3, 2013 13:28:49 GMT
I think the special school that you've approached might be your best bet. You can then match their mission statement (for wont of a better word) with the needs of your DS.
My ED yr 1 teacher said she didn't need a statement, - yr 2 teacher knew exactly what she would do if ED had one, so opinions vary even within schools.
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