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Post by flutterby on Feb 19, 2021 7:07:10 GMT
EHCP Panel have agreed Special school is needed for Butterfly, "day provision for the moment".
Since this conclusion was reached with just the paperwork we provided and they only looked at her academic needs, I am hoping we can get residential once they rectify the errors made.
That is, they forgot/omitted whatever you want to call it, to contact CAMHS and social services for their input. Unbelievable, but true. Not sure how this wasn't done, as assessment has been going on since last summer. Only occurred to them a week before panel, when we saw the draft and mentioned that her mental health needs had not been addressed at all.
I guess you can't have it all, but at least we are moving in the right direction.
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Post by moo on Feb 19, 2021 19:15:36 GMT
Brilliant news flutterby... Nope, sadly nothing ss do ever surprises me, takes the biscuit as ever... Fab news however as you say it can only be added to & made better when they add in the things they have missed...
Xx moo 🐮
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Post by leo on Feb 19, 2021 21:13:21 GMT
One big step in the right direction. Keep going. Well done.
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Post by serrakunda on Feb 20, 2021 11:04:49 GMT
ooh well done, getting there xx
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Post by flutterby on Feb 21, 2021 6:00:08 GMT
Thanks all, I am surprised at how things have gained momentum in the last few weeks. Luckily we have a very knowledgeable advocate who is helping us. She has gone through everything with a fine tooth comb and is very quick at pointing out any inconsistencies, mistakes etc which we might have missed otherwise, just simply because it's the first time for us and we are no experts in what has to go where in an EHCP (although learning fast).
We have also been fast tracked and CAHMS came back to us within two days of social services having made a new referral. Appointments have already been made and one attended.
As they know us from when Butterfly had therapy there before they are very willing to support us in our quest. We were quite blunt with CAMHS in what we are looking for and surprisingly they were quite vocal and emphatic about fighting about corner.
So keep fingers crossed.
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Post by moo on Feb 21, 2021 9:20:17 GMT
Oh thank-you flutterby it is so refreshing to hear such great news for a change.... really jealous over your advocate many sincere congrats on finding her....
So looking forward to all your updates... so rare to get CAMHS on side (in such fffast timeframe) ....
Lovely Brilliant Post xxxxx
Xx moo 🐮
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Post by serrakunda on Feb 25, 2021 18:06:55 GMT
thats all sounding so positive, the advocate sounds great - amazing the difference one person can make
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Post by shadow on Feb 27, 2021 13:23:42 GMT
Hope all goes well with residential - by the way Flutterby I see you have 3 1/2 children - what is the 1/2 - top or bottom or sliced in 2 vertically?
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Post by flutterby on Feb 28, 2021 8:24:56 GMT
Ah, that's not such a mystery, Shadow. 1/2 is a multilayered onion, so the choice is yours as to how you want to cut him up.
1/2 was my oldest kiddo's classmate whose parents decided they would let him sleep rough rather than take him with them when they both embarked on new live-in relationships each. Basically abandoned him. As he was 16 at the time social services were not interested because of this appalling loophole in the law that kids over 16 may move out with their parents' permission. Only, of course, they are too young to sign contracts, so end up in the street more often than not.
We took him in. He stayed for three years, he did his A Levels and learned a lot about what life in a family should be like, what home cooked food is and what it means to be accepted. He took his chance with both hands and he really wanted to succeed. It could have gone either way, but he was determined to make something of his life. To us, he is family. We just never had any official standing with him and he wasn't quite a child any more when he arrived, hence he is 1/2. ;-)
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Post by moo on Feb 28, 2021 8:47:19 GMT
Amazing 🙀 Great story how proud of him you sound 😊
What career path has he chosen for himself?
Xx Hope all goes well with butterfly 🦋 xx
Xx moo 🐮
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Post by flutterby on Feb 28, 2021 11:18:36 GMT
He has gone into journalism and is doing really well. He still has his problems emotionally, but he has been in a long-term relationship for 5 + years, they've been living together most of this time and seem supportive of each other. Given the background, that's his biggest success. Girlfriend is lovely, no concerns there at all. And yes, I am very proud of him. When he arrived he constantly apologized for existing. By the time he left for uni he despised microwave dinners, couldn't understand how he had ever liked cheap jam. I had introduced him to all the lovely 50+ percent fruit ones and he's never looked back. 😄
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Post by serrakunda on Mar 11, 2021 12:41:51 GMT
How did I miss this story
What a lovely and generous thing to have done flutterby. He sounds like a lovely young man. The jam was obviously the gamechanger !
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