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Post by donatella on Oct 14, 2014 8:55:33 GMT
DS has slowly been transitioning to his asd unit. This is his first full week.
Last week I had a call from his teacher who was trying to get him into the hall to do gym. DS was refusing. The floor was sticky and he didn't like the feel. He didn't like his new pumps - having not had to wear them before. There were children other than the 8 kids in his unit, about 25 apparently. So I explainec about his sensitivity to noise - again - and his fear of strangers - again. Right, thank you for explaining, we'll try a different approach.
Yesterday a note in his home school book. He'd lost privileges for refusing to go into the hall for assembly. Assembly with all the school. He didn't want to do it. Didn't want to sing. No sxxt Sherlock!
This is is an ASD unit. Where they told me they push gently but catch if he falls. They didn't tell me they'd withdraw privileges for something he can't do.
Words will be had. Again.
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Post by sockthing on Oct 14, 2014 9:03:08 GMT
Oh no Doña!!! How exasperating!! If an ASD unit doesnt get it about sensory issues, then is there no hope?? Can you enlist an authoratative OT with sensory experience to do a school visit and make recommendations and write some kind of official written recommendation?
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Post by corkwing on Oct 14, 2014 9:14:38 GMT
Duh!
(Them, not you)
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Deleted
Deleted Member
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Post by Deleted on Oct 14, 2014 12:22:10 GMT
Oh dear, not looking good is it?
And they of all people should know better.
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Post by daffin on Oct 14, 2014 15:38:34 GMT
Oh good grief!
When the professionals can't get the basics (the BASICS, for goodness sake) right, what hope is there.
Here's strength to you, Donatella. And patience.
Sigh.
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Post by sooz on Oct 14, 2014 17:40:18 GMT
 My goodness. snooz is in mainstream and they get that stuff!!
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Aaaargh
Oct 14, 2014 20:25:11 GMT
via mobile
Post by wibbley on Oct 14, 2014 20:25:11 GMT
Ridiculous - & spookily like my DS
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Post by donatella on Oct 14, 2014 20:40:32 GMT
A very exasperating call from them today. DS in refusal mode again. Basically refusing to do work that's too easy for him. He's getting bored and you really don't want him getting bored! So how do we manage his refusals? Err, you don't. You manage the cause of his behaviour, ie he needs to be challenged, stimulated, kept busy. YOU need to find a way to engage him.
Oh well we can't treat him differently to the other pupils.
Yes you can and you should. His statement requires a differentiated curriculum. It's there in black and white.
Well he has to go into the hall.
Why?
Because all the others do.
So?
Well ..... How do we manage?
Buy him ear defenders?
Oh!
Explained - again - that they're going to have to earn his trust, to get him onside. That he doesn't automatically trust adults. It'll take time.
Oh but he seems really happy!
Really? So this behaviour strikes you as happy does it? Says something completely different to me.
Oh well he seems okay.
Well clearly you know him better than I do. Because what I see is a scared, anxious, nervous little boy.
Conciliatory note in home/school book tonight promising to look at resources and strategies!
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Post by doubletrouble on Oct 14, 2014 22:37:23 GMT
My goodness what planet are they on? Not the ASD one me thinks.
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Post by esty (archive) on Oct 15, 2014 12:47:40 GMT
Unbelievable!
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enid
Bronze Member
Single Adopter
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Post by enid on Oct 20, 2014 20:54:07 GMT
Couldn't make it up could you, not looking good is it........
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Post by larsti on Oct 21, 2014 6:11:17 GMT
Just seen this. That is totally ridiculous!!
Has there been improvement in the last few days?
Larsti x
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Post by donatella on Oct 21, 2014 10:30:11 GMT
An update! Couple of long conversations with his teacher which followed a no-holds-barred letter I sent him explaining more about his background and the reasons for his wobbliness.
And thiings are changing.
He's acknowkedged that he is a very complex child and says he's probably the most anxious child he's worked with. And so they will take that on board and not push him any harder than he can cope with. They accept now - given that I write verbatim what DS has told me - that he finds noise, playtime, assembly, strangers etc very hard.
Today he's meeting with DSs old teacher to discuss strategies - what worked, what didn't.
Programme of social skills to be arranged.
Work to be done with him on identifying feelings and emotions.
Relook at the level he's currently working at - too easy, not challenging enough and differentiate for him.
Specialist asd team to go in and work on tightening up class structure as he feels it's not structured enough to meet the needs of the children (he's new there)
Also happy to talk to anyone I think could help him understand DS!
Also seems to understand why the need for DS to want control but equally understands that DS being in control makes him feel less safe! Also now understands why he doesn't trust adults!
All in all a lot more positive. Teacher keen to learn .
Thank you!
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Post by sooz on Oct 21, 2014 10:44:40 GMT
Nice one!! Xx
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Post by poohbear on Oct 21, 2014 18:30:02 GMT
Glad you've seen some progress!
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My goodness.
