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Post by serrakunda on Mar 14, 2014 21:48:06 GMT
Just received some interesting info from Simba's home authority, includes an OT report which describes in great detail all the sensory issues I've been identifying over the last 6 months or so, about which school refused to engage with me at his last statement review, Also gave a diagnosis of dyspraxia, none of this ever mentioned to me at matching.
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Post by esty (archive) on Mar 14, 2014 22:54:47 GMT
Unbelievable that it wasn't highlighted. My youngest son's needs/ diagnosi ? were all highlighted including some I don't think he's got. It's unbelievable what they tell you or not. I'd be using this info to push for a full assessment of his physical and sensory needs. Esty
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Post by serrakunda on Mar 14, 2014 23:17:13 GMT
I'm getting my knickers in a right twist over this to be honest. Simba's behaviours were more extreme when he was firs taken into care, but if I go through the checklists he ticks so many of the autistic boxes. I've been reading about developmental trauma disorder, so confusing myself more. I am working up to requesting assesments, just trying to get as much information as possible at the moment but my head is spinning with it all
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Post by moo on Mar 15, 2014 6:36:39 GMT
Aww serrakunda this is dreadful..... Hugs for you & simba {{{{}}}}
Why does this keep happening??? What is the point of hiding these things??. The placement could fail in extremes of circs ( obviously not you & simba but ykwim.... ) Also like lying it will come out eventually... Doh What is the point or thinking behind it {{{}}}
I'm with esty.... This is your 'in ' & Ammo for needing a full assessment.... Could actually help in the long run coz you can argue 'What Else Haven't I Been Told??
Good Luck xx
xx. moo. Xx
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Post by piglet on Mar 15, 2014 10:44:31 GMT
I have had a similar situation recently. I have found out about a history of severe learning difficulties in the birth family. Why no one told me I don't know. I had been worrying myself silly about little Roo's progress at school.
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Post by moo on Mar 15, 2014 14:35:03 GMT
All these bonkers situations....
Hugs piglet how frustrating for you....
xx. moo. Xx
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Post by milly on Mar 15, 2014 14:52:38 GMT
That's appalling. In the case of a history of severe learning diffs it could be something an adopter didn't wish to take on. I even felt mildly irritated no one mentioned dd2's excema, so can imagine the impact of finding out something much more significant. Hugs to you both.
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Post by wibbley on Mar 15, 2014 15:14:31 GMT
My understanding attachment v ASD is that with a settled home life & the attachment to you that ASD type behaviour should diminish not get worse. I am not suggesting at attachment behaviours go away, but that they reduce (in terms of the ASD ones). There was a lot of research on the Romanian orphans adopted from the institutionalised care as babies who displayed ASD type behaviour in their forever families which once they settled & attachment reduced.
I have found my own son (ASD & ADHD) has become more obviously ASD as he has got older. Not because his autism has got worse but because he is not moving on developmentally with his peers & things like flapping & odd noises are becoming more noticeable in an older child.
Feel free to correct me on the attachment side of things anyone.
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Post by donatella on Mar 15, 2014 17:35:21 GMT
But that can take years. Middly newly 10 and placed 9 years ago. He's a real mix of lots of stuff - adhd, Asd, wobbly attachment stuff (no diagnosis but supported with therapy for a while). I can now see him changing and maturing. We don't get the violent episodes now but still get the obsessional behaviours as well as the sensory stuff and the overwhelming need for control. As well as the food issues.
But he's a very different child than he was a few years ago.
Dd at 8 seems not to be changing. If anything her behaviours are becoming more noticeable and odder. She's probably remained static rather than getting worse but she not matured. Yet.
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Post by wibbley on Mar 15, 2014 17:49:37 GMT
And of course. Kids with ASD do make huge progress, but I think the core bits of their ASD will alwYs be there. Although there are reported cases of kids 'out growing' their Autism. Being the sceptic I think they've probably got better at hiding their traits.
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