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PIP
Feb 8, 2022 12:58:20 GMT
Post by leo on Feb 8, 2022 12:58:20 GMT
Hi, has anyone else here had any experience of claiming PIP - and if so, how independent has your young person been in filling in the forms/meeting with the assessor?
I am currently thoroughly depressed because filling in the paperwork has made me face the reality of the stark contrast between Hurricane and a 'normal' teenager in terms of what he can manage and of how little independence he has (because he can't cope with it). I am always so proud of his achievements and every step of progress he makes - but this process is making me see how very tiny those steps are and how very much distanced we are from living any semblance of a 'normal' life.
Can anyone give me advice and tips on how they have helped their child navigate a world that increasingly sees them as a grown up when they are just not able to be one?
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PIP
Feb 11, 2022 7:06:54 GMT
via mobile
feezee likes this
Post by flutterby on Feb 11, 2022 7:06:54 GMT
Word of warning. Pip is normally refused on first try, but once it goes to appeal your chances of getting it are much better.
Sadly, it ist geared towards physical disabilities only, so if there are some problems there too, emphasize them.
Also, the fact he is unable to fill this in can be used to demonstrate his inability to function as an independent "adult". All you need is permission to fill in the forms for him. Get this in writing. Also, that he needs you to accompany him to meetings with assessors. Asking claimants to fill in these kind of forms would be ridiculous and counterproductive - the very reason they apply us because they can't do things that would normally be expected of someone their age.
It is such a depressing exercise because we would like to celebrate what they have achieved, but here you have to document what they have not and are possibly unlikely to ever be able to do. It is a very painful process for all involved.
Good luck with it all and sorry for coming to this late.
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PIP
Feb 11, 2022 10:52:43 GMT
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feezee likes this
Post by flutterby on Feb 11, 2022 10:52:43 GMT
It is the hardest thing to try and support them in the adult world. The best thing to help with this are lots of diagnoses and reminding everyone. Sadly, some people won't be convinced. There is not much, if any, change really to the level of effort and time you have to put into making professionals understand. It's an ongoing battle. But if you can get official diagnoses, which clearly evidence what they are unable to do/be then this goes a long way in shoring up support (eventually). I have found supported living for my middle child has not really reduced my workload much as I am forever having to manage everyone.
Sorry, I am waffling. Rooting for you as always.
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PIP
Feb 11, 2022 12:56:53 GMT
Post by serrakunda on Feb 11, 2022 12:56:53 GMT
Simba got it first go, albeit at lower rates than his DLA. To be honest I’m completely mystified. I have two non adopter friends with children with much more complex needs than him have just been turned down.
One was awarded on mandatory reconsideration, the other is just doing theirs.
Simba took no part in it the process. ( nor did my friends kids) I had myself appointed as his nominee and did it all. He wasnt even in the house when I did the interview. I agree with flutterby that the form is geared towards physical difficulties and adults. The questions about handling finances particularly incensed me.
I made full use of the any other infortmation section and laid it on thick about adoption related trauma and did the same at the interview.
No real advice because I think its a lottery about whether you get an award.
Provide as much information as possible, doctors letters, assessments, diagnosis etc etc and be prepared to appeal
best of luck
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PIP
Jun 16, 2022 19:19:02 GMT
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gilreth likes this
Post by leo on Jun 16, 2022 19:19:02 GMT
Thank you for the advice. Heard today enhanced PIP has been awarded for 6 years - so thankfully have a while before I need to fill in those awful forms again. Phew!
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PIP
Jun 16, 2022 21:29:27 GMT
via mobile
Post by mrsbear21 on Jun 16, 2022 21:29:27 GMT
That's such good news Leo! Great return on your efforts.
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PIP
Jun 16, 2022 21:39:51 GMT
Post by serrakunda on Jun 16, 2022 21:39:51 GMT
What a result !!
welldone
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PIP
Jun 16, 2022 22:01:14 GMT
via mobile
Post by flutterby on Jun 16, 2022 22:01:14 GMT
Amazing Leo. Fantastic news. I'm still fighting for my middle child to receive PIP despite them having been in supported accommodation for 3 years and clearly unable to function. So pleased for you!
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PIP
Jun 17, 2022 10:53:13 GMT
via mobile
Post by leo on Jun 17, 2022 10:53:13 GMT
That's bonkers! How is that even possible to have that level of need and be refused?
I think our case was helped significantly by our therapists, who were brilliant when they were phoned about Hurricane. I also had a phone call but didn't need an interview.
I wish I had some magic advice to be able to give but in reality I think we were just lucky.
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