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Post by leo on May 18, 2021 21:33:06 GMT
does every single thing in education have to be such a fight to achieve?
Tsunami is at a lovely school and they are very supportive and understanding of his difficulties. Two years after he started there (I think?), I am still fighting the Local Authority for the provision in his EHCP to actually match his needs. It is so draining (financially and emotionally!)
Why can't they just finally accept I am not going away until the EHCP is appropriate? Why won't they make more effort to actually respond and complete paperwork on time - it took them 18 months to produce their draft EHCP after our initial meeting (before he started at the school), then a further six months for their 'final' one to arrive. Why haven't they learned from what the tribunal made them include in Hurricane's EHCP?
I am so frustrated and so fed up with the never ending nature of it all. I have been fighting the Local Authority in one way or another for over ten years now. I have needed to and it has benefitted my children - but I shouldn't have to. How much extra time and attention could I have given my children?
I know I am lucky to have finally found such an amazing school for both my children - but feeling sad that so much time has passed and they don't have that long left there.
Sorry, I know lots of you are having far bigger issues with school (and probably with your LAs too!)
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Post by moo on May 19, 2021 5:53:49 GMT
Well done for having the energy to keep on fighting...
We well know how amazing a good school can be... I still have nightmares remembering the volumes of added trauma my 2 suffered in a failing primary school.... Time dragged it seemed a lifetime until they progressed to their wonderful secondary ( such sadness as next year will be baa's last there....unbelievable 😥)
Hope you can get what your boys need.. so sorry as you say that the la have still not spotted that you will never stop till they produce what your boys have been identified as needed by EHCP...
Sending you energy & hugs xxx
Xx moo 🐮
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Post by chotimonkey on May 21, 2021 15:44:04 GMT
Ohhhh I relate... so much... time wasted... friends have just got their daughters placement after 3 years of fighting... tribunal ruled for them
Immediately and had some harsh criticism for the la... but doesn’t give them back their lost time or energy spent worrying and fighting xxx
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Post by leo on May 25, 2021 22:09:48 GMT
That's what I'm finding so upsetting at the moment - the lost time with my boys. It has taken until they are teenagers to get the right support and provision for them despite them coming home over ten years ago both already with EHCPs - it's not like I even had to fight for those or for a diagnosis!
Good luck Choti with your mission of getting needs appropriately met.
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Post by leo on Jun 16, 2021 11:22:39 GMT
Just had the EHCP tribunal for Tsunami. The judge had no hesitation in telling the LA off for the shambles it has been getting to this point (two and a half years) and for their lack of cohesive reasoning against the provision I was asking for.
We now await the decision but I am hopeful it will be in our favour.
Such a lot of time wasted.
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Post by flutterby on Jun 16, 2021 11:56:04 GMT
Hope you will get a decision soon and what's more - the right outcome. We should not have to fight. And so many missed opportunities will only mean a generally poorer outcome for our children of what could have been.
Thinking of you.
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Post by runmum on Jun 22, 2021 17:03:54 GMT
Keep fighting. We've just got Monkey Boy the funding for the school place he needs. He's about to go into year 11 but at least he will have 3 years in the right place. The system is tragic!
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Post by leo on Jun 22, 2021 20:17:04 GMT
Thank you. Luckily, he is already in the right school and the main provision I have been fighting for is to get his therapy included and also some issues around transport.
Good to hear you finally have a school place. Is that at one of the Red Balloon schools? (Or maybe similar.) I had considered one for Tsunami and was really impressed - but so few people know about them.
I hope it brings about a positive change for you - the right school certainly has here.
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Post by leo on Jul 4, 2021 23:39:07 GMT
We won!
The tribunal found in our favour over all 27 points I had raised. Most importantly for me, we now have our therapy written into his EHCP and I don't have to worry every year that Social Services are going to try and withdraw our funding. Such a relief.
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Post by moo on Jul 5, 2021 6:46:56 GMT
Yayyyy well done leo.... It must have been so exhausting to keep fighting on for so long xx
Enjoy the feeling of your success... you are an inspiration xxx
At last you can relax xx
Xx moo 🐮
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Post by chotimonkey on Jul 5, 2021 9:25:49 GMT
Yey… well done Leo!
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Post by flutterby on Jul 5, 2021 12:26:59 GMT
Fantastic news! So pleased for you.
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Post by gilreth on Jul 5, 2021 21:12:29 GMT
Yeah great news
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Post by serrakunda on Jul 6, 2021 9:46:27 GMT
what a result, well done you  |
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Post by leo on Oct 9, 2021 23:34:22 GMT
And now school have decided they might not be the right placement for him. Does it ever end?
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Post by moo on Oct 10, 2021 7:05:07 GMT
Whaaat??.....
Whatever has happened?? Sending you support xx
Xx moo 🐮
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Post by flutterby on Oct 10, 2021 7:19:39 GMT
Omg, this is awful. What's wrong with all these so-called professionals?
(((Leo)))
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Post by leo on Oct 10, 2021 10:07:33 GMT
Still trying to get my head round it. Our therapists are stepping in to try and resolve things. Such a shock.
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Post by leo on Dec 3, 2021 10:57:14 GMT
So, it appears that school are not happy with some of the provision on the EHCP and are saying it presents him as a completely different child.
It doesn't. It just spells out on paper for the first time just how great his needs are. I didn't hide any of these needs from them and the majority of the paperwork and evidence that went to the tribunal was stuff they'd already had.
Aaargh.
It feels like I'm back (for the third time) in the position of a school not wanting my child. It's a horrible feeling.
I don't really know how we move forward...
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Post by flutterby on Dec 4, 2021 22:23:47 GMT
(((Leo))) - I really don't know what to say. This is just heartbreaking. Is there anyone who can advocate for you at all so you don't have to deal with it all by yourself? We had this lovely lady from Sendiass who really fought our corner and also provided a much needed safe space to offload.
I really hope you will find a solution to all this. It sounds like they were not truly listening to you, probably thinking you were exaggerating. Now they have it in black and white from other professionals it has dawned on them that you must have known what you were talking about after all. Why can't they grasp the fact that we actually do know our kids best?
Thinking of you xxx
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