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Post by haze on Sept 27, 2013 18:02:49 GMT
Oldest was finally prescribed melatonin recently and it has been a success so far with her getting to sleep, sleeping better and consequently waking better able to cope with the day. She was only prescribed a limited supply & when I queried at the time what happens next & how to get a repeat prescription if it works I was told 'just ring up & tell us'. So today I rang as we are into the tail end of the prescription to be told that the psychiatrist who prescribed it is on holiday & won't be back until after we run out. When I asked so what do we do I was told that as it wasn't a 'necessary' prescription we would have to wait till the psychiatrist gets back - but don't hassle them on their first day back as they will have lots of important emails to attend to - and that oldest should do alternate nights to make it stretch further as she 'doesn't really need it'!! I have calculated that if she only takes the melatonin on school nights we could get to just when the psychiatrist is back so will try that so at least she sleeps before school. I am SO cross that this scenario has been created and with the blase attitude from the person I spoke with, and really upset that oldest will suffer as a result. 
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Post by oogleschnook on Sept 27, 2013 19:15:18 GMT
Outrageous! Think I would phone back tomorrow/tues and ask to speak to duty psychiatrist, explain the situation and see if they will at least prescribe enough to tide you through till own psychiatrist returns. You, as the person closest to her does think it's helping. If someone else feels your child "doesn't really need it" then say you will be happy to discuss this with your own psychiatrist when they come back, but given that your psychiatrist has done a full assessment of your child and their needs, you are not willing for someone else to stop or alter their medication. Grrr! Hope you get it sorted, OSx
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Post by pluto on Sept 27, 2013 21:30:33 GMT
Melatonin is free avaliable in the usa and you can easily buy it on ebay or amazon. Maybe this is not right but if you know the dose I think it is an option.
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Post by fehrscaper on Sept 28, 2013 12:03:29 GMT
If it wasn't necessary, it wouldn't have been prescribed in the first place. Who is this person? What are their qualifications? It doesn't help with the immediate problem, but I'd make a complaint about this.
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Post by abiee on Sept 28, 2013 20:38:19 GMT
we can only get it prescribed from paed and it takes ages. She is lovely though and, after I was panicking about running out, she gives me 3 bottles at a time are you on capsules or medicine
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Post by shadow on Sept 29, 2013 7:35:00 GMT
Definitely complain about the person at CAMHS - that attitude is awful. We got it for years on repeat prescription from out GP once CAMHS had started it
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Post by abiee on Sept 29, 2013 7:42:19 GMT
thats right Shadow- I didnt think, only remembered how desperate I felt when we were getting low on it
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Post by shadow on Sept 29, 2013 7:49:06 GMT
remember you can edit your post and pm!
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