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Post by twoplustwo on Jul 9, 2014 20:15:24 GMT
We are still a long way off from going down this route but. much as I love Stig, at some point I want him to have a chance at living independently and for me to have a bit of a life of my own. He has ASD and is likely to need support from outside agencies, how much support is still unknown. I, of course, will be happy to continue to support him as far as I can but my health isn't great and there is a limit to how much I will be able to do in the future.
My question is: are local authorities willing to promote independence by providing supported living or will they expect me to have him living at home with me for the rest of my life?
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Post by damson on Jul 9, 2014 21:06:24 GMT
For people with learning disabilities, anecdote says that young people are moving into supported living earlier than they used to. (No I haven't seen the evidence, it's just what people suspect/ say.) i.e. the yp and their family expect Supp living, not continued life at home. Now how that fits with ASD may well depend on where you live. For children with disabilities, transition care planning starts in year 9, when the yp is 14.
So, I would start by asking your local social services dept about supported living for people with ASD, and work backwards into getting the transition care planning. Good luck, as childrens disabilities teams typically deal with very, very disabled children and young people. Stig has a right to an assessment, and a right to a personalised budget if he meets the criteria.
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Post by esty (archive) on Jul 10, 2014 15:44:43 GMT
Get along to a Naidex exhibition where there are likely to be lots of agencies there that will have the information. A lot of charities are setting up supported homes and North of us, parents are getting together to arrange and support their children/young people in houses. It's what you want for him and what he wants that matters.
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Post by ham on Jul 10, 2014 18:13:42 GMT
In my area many of my sons peers have already moved into supported living and they are 21/22 years old.its not right for ds2at the moment. I actually work in supported living and the amount of support varies.we have homes (normal house) in the community where they just have an occasional check but always someone on the end of the phone. Then various degrees between up to high dependency unit where the residents need everything doing for them. Never worked in a residential unit but seems supported living is better as each person gets care hours I can spend an hour bathing someone if that's what they need.they 'keep' their money.in the sense it all has to be accounted for eg they have x coming in,y goes in rent,z goes on food. Any left they can use on themselves.and people I work have a decent amount and get to do loads.out for dinner, annual hoildays,cinema etc.but residential they take the lot and give residents £23 a week and do not seem to do as much activities in the community.
We have to encourage them to be as independent as possible even in high dependency unit.
Start looking and enquirying now to find out what might be available. Where I work we also have a short break unit (respite) some use that before moving into one of the other 3 units on sight. Bear in mind the people they live with might not be people they would chose to live with . Good luck
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