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Post by lilyofthevalley on Jul 1, 2014 22:20:55 GMT
I've just been away for a weekend at a conference. My AD cares for my two cats when I go away. They join the menagerie of two dogs and two cats in the flat shared by my daughter and her flatmate. I went round about 7 pm and was a bit surprised to find her in her pyjamas. She then told me that this morning she had a bath about 8 am and that her boyfriend subsequently informed her that after she got out of the bath she had a seizure that went on for some time. He stated that she was flailing around with her arms and legs and he had to try to keep her away from the walls. One of the dogs was acting very protectively towards her. When she came to she had no recollection of the incident. She found she had wet herself so was upset about that. I asked why the boyfriend had not contacted the emergency services for guidance and she said her boyfriend was worried about how she would react if he did. So she had no medical input. She slept for about five hours and said she felt as if she had done 10 rounds with Mike Tyson. I gave her my phone for her to phone her workplace to call in sick for tomorrow (she never has money on her phone), then at my insistence she phoned the new emergency NHS phone service. They said they would phone back but no word after 2 hours. She phoned them back and was again told they would call back. Eventually they did and said they could try to get a doctor to phone back but by that time she was fed up. She has promised me she will go to her surgery in the morning and insist on an emergency appointment. I am afraid it sounds like possible epilepsy. I believe her birth mother suffered from the condition. Yet another worry!  Lily x |
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Post by doubletrouble on Jul 1, 2014 22:45:30 GMT
Oh Lily, what a shame. That must be so worrying for you especially when your daughter's boyfriend doesn't seem to know what he should do -ring for help.
Very disappointing to hear the response of NHS direct, very poor.
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Post by twoplustwo on Jul 1, 2014 22:47:57 GMT
How worrying for you. I'm glad she is intending to seek medical advice. Not much to say but didn't want to read and run. Thinking of you
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Post by moo on Jul 2, 2014 4:54:04 GMT
Hugs lily.....
Sounds quite an ordeal.... Dd seems to have coped well tho.... Hope her gp surgery can offer some support & tips on strategies???... Could it be the heat ( very very humid here)??
Nasty & worrying shock for you to come home to.....
{{}}
xx. moo. Xx
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Post by Deleted on Jul 2, 2014 7:06:14 GMT
Gosh that does sound worrying Lily and definately needs checking out.
Interesting that you said one of the dogs noticed as animals do have a greater sense than us humans.
If epilepsy runs in the family then she needs tests done and boyfriend needs some training on what to do if she continues to have any fits.
Don't suppose it could be her ME coming back again could it? Might explain the tiredness? Definately an MOT at the Doc's called for I think.
Hugs to you x
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Post by mayan on Jul 2, 2014 8:57:30 GMT
Sending love and strength to you and yours. Do hope you can all get to the bottom of what caused this worrying episode and that your dd can access the right support - must have been very scary for her bf so hopefully he will take some encouragement to learn some essential first aid response just in case and perhaps think through some strategies just in case - when everyone is feeling a little calmer and you have more info. . Worrying too about the dogs response but hopefully as you have a good relationship with your dd perhaps when more is known she will be able to take on the idea of some specialised training - as it isn't a behaviour any one wants to become engrained in a negative way not least for the dogs sake.
It has so wonderful to read your updates as your dd has overcome so very many challenges with your unstinting support over the years and despite all is making a life for herself albeit each step forwards (as we know) is desperately hard won. It is always a worry for us as to whether the added stress they daily carry just in functioning plus the genetic legacy will trigger something seen in the bf as they grow up and yet to feel so powerless about it all parenting from the sidelines as and when they even let us....
I am thinking of you all and hoping your dd and not least you after all you have endured - will have yet more reserves of resilience to cope with whatever the outcome may be and that somehow something positive may yet come from this to carry you all forwards together.
Look after yourself Lily - it's a long old bumpy road we're all a travelling for sure.
Much love and strength
Mxx
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Post by kizim on Jul 2, 2014 12:31:58 GMT
Hope your dd is feeling better today Lily. Ä°t must have been worrying...sounds like you were more worried than your dd? Hope she got to the doctors.
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Post by peartree on Jul 2, 2014 14:25:36 GMT
There are lots of reasons and kinds of seizures.
there is reflex anoxic seizures (WWW.STARS.ORG.UK) and other things that are can seem alarming so you definitely need to check things out via the GP
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Post by corkwing on Jul 2, 2014 14:49:07 GMT
Sending you hugs, Lilyofthevalley.
Love,
Corkwing
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Post by lilyofthevalley on Jul 2, 2014 17:42:38 GMT
Thank you all for your support. I await news.
Lily x
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Post by Janie2 on Jul 4, 2014 16:19:37 GMT
I do hope that your Daughter is feeling better Lily, and that you know what has caused her seizure.
Knowledge and training definately required.
Love and hugs to you and ad
Spring (Janie2 on AUK) xxx
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Post by milly on Jul 4, 2014 19:35:42 GMT
That's very worrying for you (and her). However these things don't always turn out as you might expect. I have two friends who have had one off fits - they did have to refrain from driving etc for some years, but neither ever had another and eventually they were assumed to be all clear (I think).
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Post by jollymummy on Jul 6, 2014 9:23:55 GMT
I know, from first hand experience, how hard it can be to find out your daughter has had a seizure. In my case, it turned out not to be epilepsy, but it was different to how you describe your daughter's experience.
I agree with others that if there is a chance it might happen again her boyfriend and flatmate should have some training in what to do if they are with her when she has another one. Also, guidelines as to when they should/ should not call an ambulance.
It is important to check it out. So I hope she has followed it up with a visit to the GP.
Sending hugs xx
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Post by lilyofthevalley on Jul 13, 2014 8:36:54 GMT
The news is that there is no news. She has not been to see the GP. I have reminded her about the need to do this and she is unconvincing when she says that she will. It is true that she works long shifts at the nursing home and that it is difficult to get early appointments at her surgery. But I doubt her motivation. I suspect she thinks that, if she ignores it, the problem will go away. This is pretty typical behaviour for her. In the past she has frequently refused medical intervention and services, however desperate the need and however helpful they would be. She's 28 years old and I cannot force her. I just hope that, if a similar situation arises that she does not get hurt and that someone calls the emergency services.
Lily x
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Post by Deleted on Jul 13, 2014 9:34:32 GMT
How irresponsible of her but I suppose it's to be expected. Has boyfriend got any influence as he must have been quite alarmed when it happened?
I suppose if it was a one off, it would be okish, but if it happens again she really must go even if you have to drag her there.
I'm assuming she doesn't drive as that would not bear thinking about?!
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Post by lilyofthevalley on Jul 13, 2014 9:47:23 GMT
No, she doesn't drive.
Lily x
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Post by shadow on Jul 14, 2014 5:12:58 GMT
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Post by Deleted on Jul 14, 2014 9:27:19 GMT
No, she doesn't drive. Lily x Thank goodness for that. |
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Post by pluto on Jul 14, 2014 9:52:41 GMT
Let's hope it is a one off, and if it happens it is at her work or any other public place so she ends up in emergency. I pressume it is the poorly developped cause and effect thinking what causes to make such poor choices. If she has a bath make her aware that she can drown if it happens in the bath. |
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Post by twoplustwo on Jul 14, 2014 11:09:44 GMT
So sorry that she is burying her head in the sand in this way. IF she has another one hopefully someone responsible will be around to call the emergency services.
At least she knows you are there for her is she wants support in seeking medical help.
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Post by shadow on Jul 14, 2014 17:58:28 GMT
is she worried about how it might affect her job if she is epileptic? I have worked with nurses who have epilepsy and apart from some alterations to hopw they work by the NHS they have managed fine -
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Post by peartree on Jul 15, 2014 7:33:22 GMT
Lily
I think that she's got a lot of good people around her.
It's a worry I know
But you are so wise knowing when you can leave alone.
Love pear tree
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Post by moo on Jul 16, 2014 4:56:10 GMT
Hugs lily xxx {{}}
xx. moo. Xx
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Post by lilyofthevalley on Jul 21, 2014 19:05:10 GMT
It's certainly not a case of worrying about what her employer may think. Far from it! When she phoned in sick the day it happened she informed them that she had had to go to hospital after having the seizure. Of course it was not true that she had been to the hospital. As things have turned out she has had no medical input at all. She is full of contradictions. She sometimes makes very poor decisions regarding herself but seems much more insightful and responsible with regard to others such as her elderly residents at the nursing home.
Lily x
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